www.astralcodexten.com/p/bounded-distrust
1 correction found
even though the statistics were publicly accessible, apparently Swedish researchers have to get permission to use publicly accessible data
The rape-offender study discussed in this controversy used linked, individual-level Swedish population registers and required ethics approval; it was not based on publicly accessible statistics.
Full reasoning
Why this is incorrect
The post frames the first allegation as essentially: the underlying ethnicity/immigration statistics were publicly accessible, but Swedish researchers still needed permission to use them.
However, the high-profile Swedish case commonly discussed in this context concerns register-based research using individual-level data linked across Swedish population registers, which is not publicly accessible “statistics” in the normal sense.
Evidence
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The underlying study describes using linked population registers and an ethics approval
Swedish rape offenders — a latent class analysis states that it analyzed “individuals from Swedish population-based registers” and that the registers were “linked using each individual’s unique identification number” (then replaced with a serial number), and that the study was “covered by ethical approval from the Regional Ethical Review Board in Lund.” That is incompatible with the claim that it was merely using publicly accessible statistics that should be free to use without special permission. -
Swedish medical press coverage describes the issue as lack/scope of ethics approval for sensitive personal data and offense data
Läkartidningen reports that ÖNEP’s referrals involved register studies and that ÖNEP’s position was that the articles involved “känsliga personuppgifter” (sensitive personal data) and “personuppgifter rörande lagöverträdelser” (personal data about legal offenses) for which the researcher did not have the required ethics approval.
Bottom line
Because the relevant research was based on non-public, individual-level register data linked by identifiers and governed by ethics-approval requirements, describing it as “publicly accessible” statistics that merely required “permission to use publicly accessible data” is contradicted by the study’s own methods section and by contemporaneous coverage of the ethics-review allegations.
2 sources
- Swedish rape offenders — a latent class analysis - PMC
“We analyzed information on individuals from Swedish population-based registers… These registers were linked using each individual’s unique identification number… The study is covered by ethical approval from the Regional Ethical Review Board in Lund (Dnr: 2012/795).”
- Medicinprofessor åtalsanmäld igen – Läkartidningen
Artikeln beskriver ärendena som registerstudier och att ÖNEP menar att studierna omfattar “känsliga personuppgifter” samt “personuppgifter rörande lagöverträdelser” utan relevant etikprövningstillstånd.